At this early stage, an important part of our work is listening and learning so we were really encouraged by the level of interest in the review. More than 80 people got in touch to offer their knowledge, experiences and perspectives. We’re very grateful to everyone who has taken the time to contact us.
The response was even greater than we expected. We tried to involve as many people as possible so we asked everyone who got in touch to write and tell us: “What do you think we should know about DES and health impacts?”
We received an incredible 45 responses, sharing personal experiences, important concerns and issues that people felt researchers should be aware of. We heard from DES Mothers, daughters, sons, trans women and granddaughters. We also heard from Women and daughters of women prescribed DES for milk suppression.
We had conversations with DES Mothers, daughters, sons, trans women and granddaughters about the health impacts of DES. We spoke to 19 people in a mixture of one to one and small-group meetings.
This part of our engagement has now finished.
This has helped us build a fuller picture of the issues and experiences that community members feel are important, including aspects of DES and its health impacts that might otherwise be missed.
Thank you again to everyone who has contacted us and offered to share their experiences and knowledge. We look forward to keeping the community updated as the work progresses. (update provided by Exeter University)